In this unprecedented time, people with albinism continue to suffer all types of human rights violations. Often people living with the condition are subject to stigma, rejection and even violence. Albinism is a rare, non-contagious, genetically inherited difference present at birth. The condition is found in both sexes regardless of ethnicity and in all countries of the world.
People with albinism face multiple forms of discrimination worldwide. Albinism is still profoundly misunderstood, socially and medically. The physical appearance of persons with albinism is often the object of beliefs and myths influenced by superstition, leading to various forms of stigma, discrimination and social exclusion.
In honour of International Albinism Awareness Day (Saturday 13th June) we rounded up a few of the inspiring individuals proving that albinism isn’t a deterrent in the pursuit of their dreams and the volume of their voices.
Michelle Mosalakae
Michelle Mosalakae
In a short time this young actress has proven to be a force of nature. She secured her first role in 2016 as the incredibly selfless Zakithi on Mzansi Magic's IsiBaya. Within a year she had also landed the role of Kamina on the channel's popular telenovela, The Queen. She was also chosen as Revlon SA’s first ambassador with albinism.
Thando Hopa
Thank Hopa
Lawyer and actress, Thando Hopa, was the face of the first Vogue cover to feature a woman with albinism, a groundbreaking achievement. With a huge following overseas and locally, this well-known top model has worked with some of the most renowned fashion designers in the world. While she has had her own fair share of challenges, she has always risen above it all and is using her platform to advocate for others and spread awareness.
Refilwe Modiselle
Refilwe Modiselle
The actress, tv host and model was once dubbed as someone to look out for by American television powerhouse, Oprah Winfrey’s annual 'Power List.’ Refilwe Modiselle is a starring South African entertainer recognised for her leading role in fashion modelling. She has maintained a distinguished record in her career. She has been outspoken about her condition and the unfair treatment she has received because of it, but she hopes to change that.
Sanele Xaba
Sanele Xaba
Durban morn model Sanele Xaba is widely known as the first international African male model with albinism. He has modelled for top fashion brands and is a regular face in fashion magazines and runways. A strong advocate of equal rights for people with albinism, he fights for diversity in his trade and has taken part in dialogues regarding bringing awareness about people with albinism in our society.
Abongile Xhantini
Abongile Xhantini
South African activist for disability and Albinism awareness Abongile Xhantini is passionate about spreading albinism awareness. She believes that the messages you feed yourself determine the type of person you are and the type of person you can become. She has always refused to see albinism as a disability or an inability to reach goals.